About CSF
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Mission
The Cockayne Syndrome Foundation (CSF) is dedicated to enhancing the quality of life of children and families affected by Cockayne Syndrome (CS) and Trichothiodystrophy (TTD).
We advance our mission through community support, advocacy, and raising awareness. We educate caregivers, healthcare providers and the greater community. While currently there is no cure for CS or TTD, we continue to participate in research partnerships to develop a greater understanding of these disorders to facilitate development of better treatments and eventually a cure.
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About Our Logo
The Cockayne Syndrome Foundation logo blends several symbolic elements that reflect both the science and the lived experience of families affected by Cockayne Syndrome (CS) and Trichothiodystrophy (TTD). The central image can be interpreted either as a child’s silhouette or as a moon, creating an intentional optical illusion. This reflects the experience many families face, as children with CS or TTD are often misunderstood or misdiagnosed by the medical community before a correct diagnosis is reached.
The child’s silhouette honors the roots of the original The Cockayne Syndrome Foundation logo, while the heart represents the legacy of the National Initiative for Cockayne Syndrome. The butterfly symbolizes transformation, hope, and the resilience of the children and families in our community.
The DNA helix highlights the genetic foundation of these disorders and represents the promise of gene therapy as one of the few potential paths toward meaningful treatment. Finally, the open circle surrounding the design serves as a reminder that our children often live outside the boundaries of what is considered typical- yet they remain at the center of our mission.
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We are extremely grateful for the creativity of Maggie Klaers for her ability to make our vision a reality.