Run Free

This Memorial Day weekend, Run Free is running across New Jersey - mile by mile - to raise funds and awareness for two rare and devastating conditions: Cockayne syndrome (CS) and Trichothiodystrophy (TTD). 

These conditions affect real families in our communities. Children and loved ones living with CS and TTD face profound challenges, and the families who support them deserve to know they’re not alone. Research is underfunded. Awareness is scarce. That’s where you come in!

Every dollar raised goes directly toward supporting the mission to bring hope, support families, fund research and provide community to those affected. This New Jersey run is part of a larger journey - a mission to run across all 50 states, showing up for local communities everywhere we go.

You don’t have to run a single mile to make a difference. Your donation does the work. Please give what you can and help us…