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Support Our Community. Make a Donation Today!
Our organization is a donor-funded 501(c)(3) nonprofit committed to advancing understanding, improving care, and ultimately finding treatments for Cockayne syndrome and trichothiodystrophy, while supporting the children and families affected by these ultra-rare genetic conditions. We rely on the generosity of individuals, corporate partners, and nonprofit collaborators who share our commitment to making a meaningful difference for families facing CS and TTD.
Join Our Community
Join us as we shine a light on these poorly understood conditions and advocate for the unique needs of affected children and their families. Your donation helps support critical research, education, family support, awareness, and advocacy initiatives, bringing hope and tangible resources to those navigating life with Cockayne syndrome and Trichothiodystrophy.
Meet some of the children and families you can help support- and see the impact your generosity makes.
Tax Deductibility
Cockayne Syndrome Foundation is recognized by the U.S. Internal Revenue Services as a 501(c)(3) tax exempt public charity. Contributions are tax-deductible to the extent allowed by law and will be given appropriate donor recognition.