Get to Know Harper
- Cockayne Syndrome Foundation

- Dec 19, 2025
- 1 min read
Harper is 10 years old and was diagnosed with CS in December 2021. She is a true bundle of joy—full of love, light, and an incredible ability to brighten any room. Harper never meets a stranger and seems to know exactly when someone needs a hug.
Independent and determined, she is a natural go-getter. She loves Stitch, Elsa, animals of all kinds, and the color blue. She loves playing baseball and putting puzzles together, activities that push her skills but never dampen her determination.
Everywhere we go, someone always seems to know Harper. Once you meet her, you never forget her gentle spirit, her kindness, and the joy she brings to everyone around her.










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