Nikki Herson

Nikki is a mother of four children, one of whom suffers from Cockayne Syndrome. Previously, she has held a senior management position in the automotive industry in Maryland. Her current passion is educating and advocating for children and families living with Cockayne syndrome. Nikki works tirelessly to bring CS into the mainstream, fundraising and raising awareness of Cockayne syndrome in the medical community.

Nikki holds a triple BA in political science, sociology and psychology as well as an MBA from the George Washington University in Washington, DC.